SICKLE CELL EDUCATION • ADVOCACY • COMMUNITY
Understanding
Sickle Cell Disease.
Supporting Our Community.
The Sickle Cell Disease Association of Wisconsin is dedicated to increasing awareness, providing education, and supporting individuals and families affected by sickle cell disease throughout Wisconsin.
KNOWLEDGE IS THE FIRST STEP
What Is Sickle Cell Disease?
Sickle cell disease (SCD) is a group of inherited blood disorders that affect hemoglobin, the protein in red blood cells responsible for carrying oxygen throughout the body.
The condition can cause red blood cells to become rigid and sickle-shaped, potentially restricting blood flow and contributing to pain, anemia, and other health complications.
It is a lifelong condition, but early diagnosis, appropriate medical care, and ongoing support can help people manage symptoms and improve their quality of life.
EDUCATION • ADVOCACY • COMMUNITY
MORE THAN A BLOOD DISORDER
Living With Sickle Cell Disease
For many individuals and families, sickle cell disease affects everyday life in ways others may never see. The condition can cause episodes of severe pain, ongoing fatigue, frequent medical appointments, and unexpected hospital stays. Some individuals may experience complications that affect their organs, mobility, and overall health.
The experience is different for everyone.
What Causes Sickle Cell?
Learn how sickle cell disease is inherited from biological parents through changes in the genes that control hemoglobin.
Signs & Symptoms
Understand common symptoms, pain episodes, and complications associated with sickle cell disease.
Treatment & Care
Explore available treatments, preventive care, and the importance of ongoing medical support for people living with sickle cell disease.
WHO WE ARE
A Stronger Voice for Wisconsin's Sickle Cell Community.
The Sickle Cell Disease Association of Wisconsin is a Madison-based nonprofit dedicated to advancing sickle cell education, awareness, advocacy, and community support.
We recognize that individuals and families affected by sickle cell disease need more than information. They need understanding, access to resources, and people who are willing to stand beside them.
Our work focuses on helping individuals feel informed, supported, and connected while encouraging greater public awareness of sickle cell disease throughout Wisconsin.
Through education, advocacy, and compassionate community involvement, we strive to make a meaningful difference in the lives of those affected.
THE PEOPLE BEHIND THE WORK
Meet The Team
STAY IN THE KNOW
Be the First to Hear About Upcoming Events.
Stay connected with SCDAW! Sign up to receive updates about upcoming community events, sickle cell awareness initiatives, educational activities, and opportunities to get involved.
MAKE A DIFFERENCE
Your Support Helps Strengthen Our Community.
Whether you have a personal connection to sickle cell disease or are looking for a meaningful way to support others, there is a place for you.
